How To Communicate With Medical Staff When You Have A Chronic Illness
Physicians and medical staff are extremely busy people. I know first hand the amount of paperwork that is involved in being a healthcare professional. Tough deadlines, compassion fatigue, and late hours can lead to some serious burnout.
Unfortunately, many caregivers and patients with chronic illness leave doctor’s offices feeling unheard or dismissed. The words “it’s all in your head” have been uttered in too many medical offices for my taste.
I have compiled some tips to help patients and caregivers communicate with medical staff when you have chronic illness.
How To Communicate with Medical Staff When You Have Chronic Illness
Prepare questions in advance. Make sure you know the most important things you want to discuss. This is usually any new symptoms or side effects to medication, changes in you or your loved one’s health, and any other pressing concerns. Doctors are usually rushed. Coming in with an agenda and noting the most important concerns will make the appointment more efficient.
Nurses and PA’s are your friends. Nurses and physician’s assistants often have more contact with patients and they are qualified to answer many of your questions. Issues like preparing for surgery, tests and exams, or medication management can all easily be answered by nurses or PAs. If they do not know the answer to your question, they will always refer you to the physician.
Schedule appointments strategically. The first appointment in the morning and the first appointment after lunch usually have the least amount of wait time.
Bring backup. As the caregiver, you are often your loved one’s support system at the doctor. There may be times when caregiving is overwhelming or you need to ask difficult questions about your own health. Bringing a companion who will encourage you and help you feel supportive is a great option.
Use “I” statements. Assertive and direct communication is necessary. If you do not understand the language the doctor is using, state “I do not understand the diagnosis. I need you to explain it to me please.” Do not be afraid to speak up or feel like you have to go home and consult Dr. Google. The medical team is there to help you and there are no stupid questions.
You are important. If you are feeling symptoms of depression or anxiety, communicate this to the doctor. This goes for both the patient and the caregiver. If you are uncomfortable sharing this information in front of your loved one, ask if you could please schedule an appointment to see the doctor alone. Chronic illnesses are family diseases and everyone needs to be well for the best prognosis. Your doctor will likely make a referral in the community if they cannot help you with a particular situation.
Be your own advocate. Medical language can be very confusing and sometimes doctors forget that many people do not understand the lingo. A chronic illness diagnosis may also mean an arduous process full of misdiagnoses and ineffective treatments. This can be disheartening and overwhelming for everyone involved. Never forget to be your own advocate when you feel that a treatment or a diagnosis is not sufficient or you have a bad feeling.